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Thalassemia Program

Cooperative Agreements to USA and Puerto Rico Agencies, Nonprofits,
For-Profits, Tribes, and IHEs to Improve Treatment of Blood Disorders

Agency Type:

Federal

Funding Source:

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Health Resources and Services Administration (HRSA) - Maternal and Child Health Bureau - Division of Services for Children with Special Health Needs

Conf. Date:

11/12/20

Deadline Date:

12/21/20 11:59 PM

Description:

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Cooperative agreements to USA and Puerto Rico agencies, nonprofit and for-profits organizations, Tribal entities, and IHEs for projects to improve treatment for individuals with blood disorders. Applicants are advised that required registrations may take up to a month to complete. The goal of the program is to improve access to evidence-informed care for individuals living with thalassemia and their families.

This program is comprised of two projects – Project 1 is the Thalassemia Regional Program and Project 2 is the Thalassemia National Coordinating Program. The purpose of Project 1 is to have three recipients support a regional infrastructure to increase the number of providers treating or co-managing individuals with thalassemia in their communities. The purpose of Project 2 is to coordinate telementoring and educational initiatives across the regions and to improve knowledge of thalassemia and evidence-informed treatment recommendations among patients and families. 

Applicants may only apply for either Project 1 or Project 2. 

Project 1: Thalassemia Regional Program 

  • Each recipient is responsible for identifying and establishing a network of hematologists and other providers in a minimum of three states in the region. The goal is to extend the reach of the limited number of experts through telementoring, telemedicine, and other strategies in collaboration with the Thalassemia National Coordinating Program (see below). In collaboration with the Thalassemia National Coordinating Program, recipients will provide ongoing education on evidence-informed diagnostic/treatment guidelines and best practices for disease management1 to hematologists and health care providers who see individuals with thalassemia. Recipients will also collaborate with the Thalassemia National Coordinating Program to inform patients and families on evidence-informed treatment recommendations.

Project 2: Thalassemia National Coordinating Program

  • One recipient will be funded for Project 2 to support activities that improve the quality of care available to individuals living with thalassemia. This includes helping regions coordinate regional telementoring activities, and recruit hematologists and other health care providers to manage or co-manage individuals with thalassemia to reduce duplication. The Thalassemia National Coordinating Program will provide education and information to individuals and families on evidence-informed treatment. Project 2 will enhance coordination across the regions and increase the program’s ability to respond to emerging needs in the field and among recipients.

Program Objectives and Priorities can be found on page 6 of the NOFO, see Supporting Documents below.

GrantWatch ID#:

GrantWatch ID#: 192470

Estimated Total Program Funding:

$600,000

Number of Grants:

HRSA will support three awards for Thalassemia Regional Program (Project 1) recipients. providers treating or co-managing individuals with thalassemia in their communities. The program will also support one award for the Thalassemia National Coordinating Program (Project 2) recipient.

Estimated Size of Grant:

- Project 1: Up to $175,000 per year
- Project 2: Up to $75,000 per year

Term of Contract:

June 1, 2021 through May 31, 2026 (5 years)

Eligibility:

  • City or township governments
  • County governments
  • For profit organizations other than small businesses
  • Independent school districts
  • Indian housing authorities
  • Native American tribal governments (Federally recognized)
  • Native American tribal organizations (other than Federally recognized tribal governments)
  • Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education
  • Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education
  • Private institutions of higher education
  • Public and State controlled institutions of higher education
  • Public housing authorities
  • See RFP and/or Grant Guidelines for full eligibility
  • Small businesses
  • Special district governments
  • State governments

Additional Eligibility Criteria:

Any domestic public or private entity, including an Indian tribe or tribal organization (as those terms are defined at 25 U.S.C. § 450b) is eligible to apply. See 42 CFR § 51a.3(a). Domestic faith-based and community-based organizations are eligible to apply.

Pre-proposal Conference:

HRSA has scheduled the following technical assistance:

Webinar
- Day and Date: Thursday, November 12, 2020
- Time: 2–3 p.m. ET
- Call-In Number: 1-866-880-0834
- Participant Code: 23996302

Weblink: https://hrsa.connectsolutions.com/21035

HRSA will record the webinar and make it available at: https://mchb.hrsa.gov/fundingopportunities/default.aspx.

Pre-Application Information:

Application Due Date: December 21, 2020

The due date for applications under this NOFO is December 21, 2020, at 11:59 p.m. ET. HRSA suggests submitting applications to Grants.gov at least 3 calendar days before the deadline to allow for any unforeseen circumstances.

Required registrations:
Currently, the Grants.gov registration process requires information in three separate systems:
- Dun and Bradstreet (http://www.dnb.com/duns-number.html)
- System for Award Management (SAM) (https://www.sam.gov)
- Grants.gov (http://www.grants.gov/)

Ensure your SAM.gov and Grants.gov registrations and passwords are current immediately! HRSA will not approve deadline extensions for lack of registration. Registration in all systems, including SAM.gov and Grants.gov, may take up to 1 month to complete.

View this opportunity on Grants.gov: https://www.grants.gov/web/grants/view-opportunity.html?oppId=329183
For a list of application documents, see the Package tab (press Preview) on the Grants.gov page above.

Contact Information:

Before starting your grant application, please review the funding source's website listed below for updates/changes/addendums/conferences/LOIs.

Direct questions to:
Hakim Fobia
Project Officer
Genetic Services Branch
Division of Services for Children with Special Health Needs
Telephone: (301) 945-9842
Email: hfobia@hrsa.gov

CFDA Number:

93.110

Funding or Pin Number:

HRSA-21-035

URL for Full Text (RFP):

Geographic Focus:

USA: Alabama;   Alaska;   Arizona;   Arkansas;   California;   Colorado;   Connecticut;   Delaware;   Florida;   Georgia;   Hawaii;   Idaho;   Illinois;   Indiana;   Iowa;   Kansas;   Kentucky;   Louisiana;   Maine;   Maryland;   Massachusetts;   Michigan;   Minnesota;   Mississippi;   Missouri;   Montana;   Nebraska;   Nevada;   New Hampshire;   New Jersey;   New Mexico;   New York City;   New York;   North Carolina;   North Dakota;   Ohio;   Oklahoma;   Oregon;   Pennsylvania;   Rhode Island;   South Carolina;   South Dakota;   Tennessee;   Texas;   Utah;   Vermont;   Virginia;   Washington, DC;   Washington;   West Virginia;   Wisconsin;   Wyoming

USA Territories: Puerto Rico (USA)

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